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Why I March: For One Voice. One Demand. To Save Lives.

9/22/2014

12 Comments

 
Picture
When asked to write this blog about why I March, a plethora of reasons ran through my mind. Of course, there is the obvious and most important reason why I March - for my beloved daughter and for my family. Anorexia ripped through our house like a category five hurricane. It took my youngest daughter as prisoner. It descended upon her, sucked her up, and spun her into thinking that she was not worthy, that she was not loved, that she was not beautiful, and stole years from her life. It leveled our house to its foundation. But we are among the fortunate. We were able to rebuild. My daughter is now strong. She has learned tools and is constructed of materials to withstand the winds and the storm of anorexia. But many are not so fortunate.

My first vision of this March came almost six years ago when I lobbied in DC for eating disorder legislation with my then 16-year-old daughter. At the end of that day the only thing that went through my mind was that our legislators just do not “get” it. They don't understand the hell that sufferers and families go through when battling eating disorders. At that moment, I realized that it would take a bunch of angry moms and families “marching” on Capitol Hill in order to create change. It is going to take eating disorder organizations to quit pursuing independent strategies, to collaborate, to join hands and unify their voices into one powerful voice that will not take no for an answer. Our legislators need to understand that early diagnosis and treatment is vital; that eating disorders do not have to be a life sentence and are survivable. Legislation needs to be enacted that requires the medical community to be educated on eating disorders, that compels insurance companies to swiftly cover treatment, and that provides funding for research.

So, why do I March? I March for those that have lost and those who still suffer. I March for those that have survived, but still have battle wounds. I March for the phone calls I receive every day from mothers crying that their child is very sick and no one will listen. I March for the families that have children lying in hospitals and can't convince insurance companies to pay for treatment. I March for the sufferers who have been seeking treatment for decades but are told repeatedly that they are not sick enough or aren't worthy. I March for the men and boys that suffer, but can't receive treatment because “males don't get eating disorders”. I March for the children that can't put food to their lips, but the moms are told they are just picky eaters. I March for the young woman in Texas that had 13 moms battle Texas Medicaid for five months so that she could receive life-saving treatment. I March for all those like her that are still suffering. I March for my friends that have had to watch their children die and were told: “…you are to blame for your child's eating disorder…” I March for my friends who can’t March because their children are still suffering and need to be supported at every single meal. I March for those that are too sick to March for themselves. I March because the stories need to be told and they need to be heard. I March because we all need to go to Capitol Hill, stand up, and shout “No more!” I March because if we don't fight for our children and for ourselves, who will?

It is time to unite all the fragmented voices across our country. All of the eating disorder organizations need to stand strong with moms, families, advocates, and sufferers. Together, we must send a powerful message to our legislators that we are unified and are of one voice, one stance, and one mission. As of this date, 31 non-profits have joined hands to help deliver this message. This is unprecedented and a huge step forward. Please be a part of the change and join us on October 27 at 3 pm in Washington D.C. to use YOUR voice at the federal level. Together we can make a difference!

This is why I March!


Register: www.MarchAgainstED.com

Video: https://www.youtube.com/watch?v=4xfXK7fRkGk

12 Comments
Becky Henry link
9/23/2014 03:56:23 am

Cherie, thank you for all you are doing for all of us impacted by these deadly, little understood, life threatening illnesses.

And thank you for all you have been doing on the March Planning Committee to make this possible. You are a dynamo and I cannot express my immense gratitude for all you're doing. Your daughter and your family survived this and you could have gone back to your life and rested, instead you're helping create a hopeful scenario for the rest of us.

See you in DC!
Becky Henry

Reply
Cherie
9/23/2014 10:40:48 am

Thank you so much Becky for your very kind words. My hope is that this March will help get legislation passed that will help end the prolonged suffering and inequities that so many have had to endure. See you in DC!

Reply
jdeniseouellette link
9/23/2014 05:55:44 am

Moms will work with and for the answers--no matter where they come from. We are uniquely positioned to stop the politics and infighting and just get help for those who suffer! And so we march . . .

Reply
Cherie
9/23/2014 01:16:48 pm

Moms and families will raise their voices at the March. Time for all to join hands and accomplish change.

Reply
Debra Schlesinger link
9/23/2014 08:04:04 am

I loved your words I MARCH! Bless you ..c u in DC!!!

Reply
Cherie
9/23/2014 01:17:32 pm

Thank you my friend! See you in DC!

Reply
Lisa Guimont
9/23/2014 08:38:50 am

Thank you Cherie, for all you do and for who you are! I know you will take my heart and to March in DC in my absense this year! Mom's and others will drive the change. This is only the beginning.

Reply
Cherie
9/23/2014 01:19:00 pm

Thank you my friend for the sweet words. I will absolutely be Marching for you and your beautiful daughter in DC. Know that you will be missed. Hugs.

Reply
jenny (young woman in Texas)
9/23/2014 01:28:18 pm

Thank you mama C

Reply
Fran
9/25/2014 03:36:27 am

Thank you Cherie ( Kathleen, Becky, Debra, et al) for teaching the rest of us how to effectively Break the silence, Bust the myths, and Bury the shame. I admire all of you, & feel prepared for this uphill climb.

Reply
Cherie
7/23/2015 07:38:03 am

Thank you so much my friend!

Reply
Angelia C Miller
9/24/2015 12:25:59 pm

Reply



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